Last night Nora slept for 5 Hours!! Unfortunately, she went to sleep at 7:30 and I didn't go to bed until 10:30, so I did not get the same 5 hours of sleep, but still! Not sure if it is the start of more long stints of sleep to come or what. She is still pretty young for that, so maybe it was just a fluke.
Yesterday Nora visited her neurologist. He examined her and said that he can still not see any physical signs of Cerebral Palsy. He said often the signs do not appear until it is time for the baby to sit and walk. Nevertheless, we'll take it as a good sign that she is looking good so far. Other than that there was no real news about her little brain. She is missing a chunk on the Right Side (part of the Frontal Lobe and part of the Parietal Lobe). It is hard for the doctor to say how this will affect her though since she is a baby and the rest of her brain will develop differently to help compensate for these missing areas. We will just have to monitor her development and find ways to help her to compensate as she grows.
The doctor also said he is pretty sure that the underdevelopment in her brain was from the chromosome disorder (although he can't explain why it only happened on the right side - most chromosome abnormalities happen on both sides of the body) and not from an in utero stroke or brain hemorrhage. For some reason this makes me feel better too because it is not another totally separate piece of bad luck.
Randy's Birthday & Monster Jam
12 years ago
Hi Amy
ReplyDeleteHave you gotten in touch with the Early On or Early Intervention Program that is part of either your local or county school system? Nora is eligible for therapists, teachers, ect. through that program. That is the program I work in in the Detroit School System. It is a federally mandated program, so every school system has one. Grosse Pointe even has a very nice program that is based in one of our elementary schools. It is a Birth to Three program for children who are at risk for developmental delays. If your local school system does not have this program, they must refer you to the county or closest school system that does provide this service. Our program in Detroit is so large and we have so many different therapists w/different areas of expertise that sometimes we assist or help out smaller school districts, like Harper Woods and Grosse Pointe w/services.
Leslie