Just waiting for the neurosurgeon to do his rounds but we expect to be sent home today. Nora is doing well and I think we can say that the surgery was a success. She is pretty much back to normal. Her CT scan showed the pressure relieved in her brain. We are going to have to backtrack a bit with her PT because her left side is now not working as well as her right, but everyone says that it will come back over time with some work. Now we will just have to follow up with MRIs periodically and monitor her head size to make sure the fluid is still escaping properly over time.
It was one year ago at this time that we first found out about Hydrocephalus. In the end of October last year we first met with the genetic counselor and the perinatologist and had them reassure us that everything would be just fine and that these things are so rare that they were sure it would turn out to be nothing. We have been through a lot since then. One thing we know for sure is that these doctors don't have the answers to everything. They are just people trying to do their jobs. We will just have to wait and see what is next...
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