First Hurdle Over, Now on to the Next

Yesterday and today Nora slept all day. I mean ALL day. She had to be woken up to eat and just slept right through getting her temp checked and people listening to her through their stethescopes all day. She falls asleep while eating. So, it is back to the NG tube! Just like when she was a tiny baby! The tube give us a way to get her formula. She has switched to higher calorie formula to try to increase the nutrition content. Unfortunately, she is still vomiting though. I would say she keeps some of it down, but probably about half comes back out. I think the next step is to put her on more of a continuous drip of formula rather than slug it all to her little belly at once. I think she may be able to come home once her feeding is stable. Her antibiotics are all oral now, so there may not be a need to stay here.

When she is awake, she is not herself yet. She is reaching for toys and her blanket - so that is good. Her arms and legs seem to be working well. She is a little unstable sitting, but it will come back. She just has a dazed wide-eyed stare and hasn't smiled in days. Hopefully this is the effect of some of the drugs she is on. In the last day she has come off a lot of them though. She is not on any pain meds but Tylenol. She is getting some anti-seizure meds which can make you sleepy. We just have to wait and see.